So, today I called the Rehab Center to see if we could schedule a tour and assesment and also if Ayla would be able to stay with Ezra and I instead of the hospital floor (with round the clock nurses waking her every hour through the night).
They are more than willing to set up the orientation, but Ayla will have to stay on bed floor. It's not possible for them to allow Ayla to stay in the suite with Ezra and i. I am more than welcome to stay by bedside, but Ezra is not.
I told them, "that is a deal breaker for us. I can't leave either one of them alone, it's not an option, they are both too young."
So that is that...
This all happened after i talked to our PT here in Windsor. She thinks that Ayla could really use Bloorview. That she's expected Ayla to get a little further, even though she's doing better if she doesn't get to a point soon where she feels like Ayla is "making leaps and bounds" then she's not sure what to do. "It's easier to heal emotions with time but if she can't ever walk through a mall on her own then that's going to be terrible for her emotionally."
Every time i think about this i cry. I hate this...i hate it all. We can't take her there...but what if she doesn't get better if we stay here.
Thanks for your prayers.
Lacy
Subscribe to:
Post Comments (Atom)
praying for you all
ReplyDeleteSlow and steady and do what feels right for everyone - you said it yourself, you can't leave either of them; to beat yourself up over something that might not even come to pass with Ayla is a waste of your precious energy...she may, she may not - and none of that matters if everyone is in a bad place emotionally and mentally.
ReplyDeleteMy thoughts and love are with you all, always :)
I can't help but wonder if they will bend the rules a bit. It's too bad the doctor can't call and put in a word for you so that Ezra can stay with you guys or something. A compromise would really help your situation it seems. I feel for you. It can't be easy making these decisions. With something so rare it's hard for anyone to know what exactly should be done. Hugs!
ReplyDelete