3-10-10

Last friday and this past monday Ayla had Occupational Therapy. They went okay. The OT said she could work on Ayla for hours. Ayla held up alright, losing it a few times, but not a mess of tears the entire time. Monday she even had a little fun the last few minutes playing playdough.
Today she had PT, i prayed right before we went in that God would help this to be a better day for her. It was pretty good. She protested of course but not a mess of screams the whole time. She even let the PT hold her for a bit without too much protest. She walked about 10 assisted steps with her magic legs on 4 times. She cried most of that time, but did pretty well. She also stood with her magic legs on with the PT and rolled a ball back and forth to Ezra. She kept saying "no" and swattign the ball away but we noticed that it kind of looked like in swatting it away she was pushing it back. Ryan wanted me to mention, he caught her grinning for just a second and then when she saw him, went back to a scowl. Little booger.
We also saw the behavioral consultant today, who happens to be retiring on friday...oh good another new person for Ayla to meet. Anyways, she gave us some tips on how we can help. She agree's that we do have to keep Ayla trusting us without reinforcing the thought that "i'm so sick i need mom and dad to help me with everything." Still respond to her, but to tell her she's is ok and we'll be right there, instead of rushing to her side. Which we try to do, but for so long she's been ill. So we will continue. She will realize that these things are fun and that mom and dad are right there and if it does hurt then we will help her. Also, making her do things. Instead of "Ayla, would you like to wear your magic legs?" "Ayla it's time to wear your magic legs, IT WILL BE FUN." And make it as much fun as we can even if she's not enjoying it at first, she will at some point. She also agree'd with what the PT said last week, Ayla is too smart for her own good. Bloorview Rehabilitation Center in Toronto was talked about today as well. We got their feelings and thoughts on it. So we are praying for the Lords direction in that.
This Friday we see Ayla's doctor in London. We are still continuing to wean down her meds and it's working fine. This may be too much, but Ayla is struggling to go poop now. It's an all day agony/battle for her. Yet another difficult thing for her to deal with.
This week has been a hard week for us because Ayla is disabled, but life goes on. So to take what God gives us and just keep going can be hard some days. God is good. We are so thankful for the people God has surrounded us with.

Lots of Love.
God Bless.
"Come to me, all you that are weary and are carrying heavy burdens, and i will give you rest." -Matthew 11:28


I also just wanted to add, this doesn't have anything to do with Ayla, but we know a lot of people fighting with cancer right now, if you could please take a moment to pray for them, God would love it (and we would too). Be a blessing.