May 28, 2012

Hi everyone! 

Happy super hot May 28 to you all! 

I was looking at the blog i keep for Ayla last week and realized i haven't updated since the end of march!:)  You should know, no news is good news. 

 

I think i sent a breif email about some blood work issue's she was having about a month ago.  Those have since resolved themselves.  She did labs once a week for about 4-5 weeks and was off her medication b/c her liver was overfunctioning.  They still have no idea why, unless she was fighting some invisible virus.  Thank the Lord for no relapse and that the week she had to go back on her meds, her labs were totally normal!  My babe was getting really tired of all those pokes (as was I).  So we are going back to our 6 week labs.

 

Ayla is still having some nausea from her weekly injections (even with tummy pills), not to the point of throwing up anymore, but the following morning she is queesy when she gets to pre school, after driving in the car for about 40 minutes.  We think its a combo of already feeling a bit sick to her stomach and then motion sickness from a long car ride.  We are going to change the days and make sure the day after she gets her injection is a home day with not too much driving. 

 

She has 2 treatments in the hospital left for her experimental drug, June and July.  She's handling them very well and building up lots of beads for her beads of courage collection:)  We love all the nurses in peds days, they are amazing as well as the child life workers.  Just awesome.  I remember being so afraid of how she would cope with these treatments after being so broken, but God has made her so strong and resiliant!  We are so thankful!  Mid July we will head up to Sick Kids in Toronto for a reassessment to see how the experimental drug is working and to decide whether or not to reapply for funding and continue with them. 

 

This summer is going to be an awesome summer for Ayla. We can finally breath easier about her bone issues and no longer have to hold our breath for too long when she falls (like the other day when she was climbing up the sliding end of our backyard slide!!!!)  She is doing amazing in swimming lessons and loves to be outside so much. 

While i sit here and reflect on the last 2.5 years...God is so amazing.  I don't think i would have enough paper to list the miracles and great things he has done through Ayla's illness.  Two of our best friends were baptised this weekend...part of their story was watching our family cope through Ayla's illness.  God can turn terrible awful things....into amazing wonderful beautiful things:)  Praise the Lord.

 

Ryan is still working in London and it's going well.  His 3 month review is coming up this week, i'm pretty sure it's promising.  I think they are thankful to have him. 

We listed our home a couple weeks ago and have only had 1 person through, which is a bit discouraging.  We have an open house next week.  It's been a bit stressful trying to get stuff done on the house to sell when Ryan is gone all week and we only have weekends.  It means sacrificing family time when he's home to finish up projects...hopefully this weekend coming will be the last one we need to do that.  Please be praying about this.  We have looked into buying a house in St. Thomas, so i think that is where we will end up.  I like it much better than London itself. 

We are feeling very torn b/c we have connected and love so many people here in Winsdor.  It's going to be hard.  We are just praying for the Lord's guidance in this situation.

 

Anyways, that's all for now! 

We love you all and are so thankful for how you love and encourage us!

Lacy