I wrote out a whole update and then our power flicked off and poof...it was gone!
They decided to keep Ayla on the experimental medication for 6 more doses. They didn't notice a HUGE difference, but a bit, so they will check again in 6 months. If there isn't a measurable difference after that, then we think, regaurdless, we will take Ayla off.
It was a while before we heard back b/c the doctors had to apply for more funding for us, in order for Ayla to recieve this $1100/dose medication. Thank the Lord, the funding is given for 6 more compassion doses.
She goes in tomorrow for a treatment and then once a month for the next 6 months.
That's all for now! Her birthday is this saturday! She will be 4 and is super excited about it (as am i!!). She's happy and healthy and looking so forward to a fun birthday:)
Lacy
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