Ayla-jaw pain

*Ayla started having pain and swelling that was virtually uncontrolled on friday. All of her docs are on holiday and we were struggling to find one. Here is the update* By the grace of God (and being blessed with a truly great friend...many actually) we were able to get Ayla in to see a pediatrician today. Someone who hasn't seen Ayla before but none the less is pretty confident that what Ayla has in her jaw is a flare up of her disease (EF). Hopefully when her specialist is back on the 13th we will be able to get in touch with her quickly. The doc today put her on heavy steroids (prendisone that she was on before)...with tears in my eyes i agree'd it was the only way for right now. I'm thankful that the drug works so well but i truly despise it...it does so many bad things in exchange for good. The Lord knows what she needs so i trust it will all be okay and whatever happens He will guide us... So the steroids are for a week including a taper off. So it's not long, just very large doses. She can only take tylenol for pain which doesn't really do much, but hopefully soon the pain will subside. She is very restless, cranky, tired, sad, etc. She needs a good nights sleep for sure at this point:) And so do I:) I need to say as frustrated as i get and weary, God is always faithful and i'm thankful that there is always a morning and everything is seen in a different light. God has really given me some major patience these last 2 days with very little sleep, a sick girl, a missed husband, a busy boy, and all else that comes with this life. I'm thankful for that (and i think the kids are too). Thank you for thinking of us. Thank you for praying for us. Thank you to listening to me vent. Thank you for loving us all. Lacy PS i'll send something out in a week or so and let you all know how she's doing. PSS Ryan is about a little more than half way i think out to Alberta.