Morning everyone!
Today we are off to London to see Ayla's Rhuematologist and the new one that will start in the New Year. We are thankful for a new set of eyes on Ayla's case and also that the old one will continue following Ayla from Sick Kids in Toronto. Today we will talk more about the trial medication they wanted to look into for Ayla and also see if the injections we have been giving are helping. I'm writing now b/c i won't have access to this email while we are away for the holidays. I will write with an update when we are back after Christmas:)
She is going to London without the MRI that they requisitioned over a month and half ago. After many phone calls to the Rhuem, Pediatrician, and hospital radiology, they finally JUST connected on Wedensday late afternoon. I'm sure they will call and want her in next week while we are away in New York for my family Christmas. Lord will we will not be in any hospital for anything after the New Year. If they could wait this long, another little while isn't going to hurt anything. Obviously no one is in any hurry. I'm a bit frustrated, but it's okay.
Ayla is doing well phsyically. She is climbing on and off beds and couches and such. Which makes way more falls happen, but she's holding together pretty well. Thank God she's off those steroids! She's eating lots and hopefully today we can see a tiny bit of weight gain.
People at preschool/therapy and at church all have been commenting that she seems so much more happy. Whether that's because she's feeling better or growing up we can't be sure. But we are sure that we are thankful.
This Christmas we are thankful that we are not in a hospital. We are thankful that our girl is happy. We are thankful that Ryan is home with us. We are thankful for friends and family. We are thankful for prayers all over the world. We are thankful for all God has taught us through the suffering of our little girl. We are thankful that God sent is only begotten Son for us so that we shall not perish but have enternal life. Happy birthday Jesus and thank You so much.
Merry Christmas to you all!
God Bless!
Lacy
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