Ayla-3 more days!

Hi everyone!
Ayla is doing well. Three more sleeps until she gets her purple cast off! Friday is the day. Tonight we were talking about how nice it will be to have a bath in the real bathtub, not on the kitchen counter:)
Today she was supposed to have an appt for just a check up with her pediatrician, when we got there for some reason it shows she never had an appt at all. Even though they called me to tell me about it. So once we again we get jerked around because of someone elses error and have to go back friday after we get her cast off. I'm trying to take it all in stride but at times feel like Ayla and I are rag dolls, just tossed around for whoever and whenever is conveinient.
Next tuesday Ayla got in to see the "bone doctor" in London. I'm not sure whether it's good or bad that she got in so quick when it was supposed to take "several weeks." I will just consider it an answer to prayer that we wouldn't be waiting long. She will likely have more bloodwork when we are there.
I am hoping to get her in to see her Rhuematologist soon b/c in 2 weeks she will be off her steroid (praise God!!!!) and i want to make sure she's handling being off it okay. That trip will take us to Toronto b/c the earliest they can see us in London is Mid/end November. At this time they are going to try to get hr seen by a dermatologist as well to check the parts of her skin that are still stiff/thick/hard and make sure it's just scarring and not her disease still not under control.
I am disappointed at the rigamarole we have been through to try and get bloodwork to Ayla's naturopathic doctor. I have been trying to get her a copy of Ayla's bloodwork to see if she has any suggestions on how to get Ayla to better absorb the supplements and it's seeming near impossible to get them to her, none the less to have them release them to me. I think i might have got someone who will make me a photocopy...Thank the Lord for that.
Last week we were away in New York visiting my family. We had a nice time. We also went camping and spent a day at Marineland in Niagra falls. The kids had a blast and Ezra even got to feed the Beluga Whales! We also stopped in Grimsby and had a nice visit with some missed family:)

Things are going well. Ayla is happy and having fun all the time.
We saw a friend today that hasn't actually seen her walk on her own since this time last year. We have seen her but it's been at intervals when she was just begining to move again holding hands, wheelchair around, the 1st cast that didn't allow her movement, and now... She saw her walk today and said, "I can't believe she is walking...it's been over a year since i've seen her do that." She gets around like nothing hinders her at all. Thank the Lord for that. When she gets that cast off...look out world:)
Thanks for all the support from my last update. I emailed a friend a few days ago and this is the best way i can describe how i feel, 'Most days are easy and i rest in the hands of the Lord. Once in a while, i have a day that i feel like, 'FOR REAL, HOW MUCH MORE?' And those days feel impossible to overcome. But then i wake up...and it's a new day and i feel like it's not so impossible.'

Lots of Love!
Lacy

"God will Never let you sink under your circumstances. He always provides a safety net and His love always encircles." -Barbara Johnson