Sunday, August 15, 2010

Ayla got her purple cast on

Ayla got her cast on early this morning. Praise God for good friends that took care of Ezra today so Ryan, Ayla, and I could come home and have a nap:)
She is getting so very brave. No tears until they started taking off the temp cast for the new one. And when it was done, it was done. The doc was nice, it was fairly quick and it's PURPLE:) We brought our own casting from home (we had left over from the last time) b/c they only had white. She loves her purple cast and is getting around very well. She has even stood holding 2 hands on the bed. The doc said she can weight bare on it...so we will talk to her PT's tomorrow and see what the plan is. She still haven't been cleared really from the femur break so they haven't been doing much walking/mobility at preschool.
The doc today said, "she has osteoporosis." Now i'm not sure if he's assuming that based on what her bones look like on xray, or if that is what is going on b/c of the meds. I emailed her specialist (rheumatologist) today and explained to her my concerns of this continuing. How much worse can her bones get? Her teeth are also a mess. These meds are really doing a number on her, even with all the supplements we give her to restore what the meds drain. We are praying that some how we can figure out a way to get her body stronger again. Inside and out.
She's still very small. She still weighs less now than she did this time last year, right before she got sick.
It's all very overwhelming at times. Most times it's just "a day in the life of what God has for us." We try and make the most of it.
She is such a special girl.
I wanted to tell you all how smart she is:) We often think of all the stuff she "can't" do. But last week she had her assesment at preschool (i'm waiting for the write up). Most of her abilities, other than gross motor, range from a 3 year old to 4 and a half! Her fine motor are that of a 4 year old and so is her cognitive among other things. Her teacher was so happy to tell me all this and can't wait for me to see the the actual assesment. She's little miss smarty pants. So Praise God for so many other things that he has blessed us all with the we tend to overlook. Thanks for my smarty pants girl:)

That's all for now.
Thanks for the prayers.
God bless you all:)
Lacy

2 comments:

  1. It'll all work out in the end. I'm glad that she is doing well besides her other leg breaking. I wish you guys well. I think that everything happens for a reason and for some reason she needs to be a strong cookie for the future. This is how she will gain that strength. When it's all in the past, you may see how it had to be this way. You are a wonderful, strong mother and she is very lucky to have you. Hugs!

    ReplyDelete
  2. so funny you said this, "It'll all work out in the end." Because yesterday i was reading and something that stood out to me was, "it'll all work out in the end, if it's not working out, it's not the end.":)

    ReplyDelete