Ayla update 7-16-10

Hi all.
I wanted to let you all know that last on Friday Ayla saw the Rhuematologist in London. No big news to report except that she gave us the clear to continue weaning Ayla off of the steroids. That was great news! As much good as the medications do, they do some terrible things as well. It was mostly b/c of them that she broke her leg, that and the fact that to make your bones stronger you need to use them lots and she hadn't been for a while. That said, we had a break through at this appt. AYLA ACTUALLY SPOKE TO THE DOCTOR!! We have seen the same doctor lots and lots of time since all this began and she never once has spoken to her. Just cries or grunts or totally ignores. They had a short little conversation about how old she was and how old Ezra was and her necklaces:) It was so nice to have her not be so afraid. It was a fairly short appt and we don't have to see the Rhuematologist again until October. We will just communicate through email about the continuation of the weaning process.
A funny store from the doc appt was that there was a little boy a bit younger than Ayla and he was in the hall outside her room jumping and stomping his feet that he wanted a cool thing like she had:) Her "magic leg." They had to explain to him that it wasn't a toy and he couldn't take it home. Ayla was quite defensive about him taking her cast. It was cery cute. Much more refreshing than the "what's wrong with her?" question i get multiple times a day. Nothing is wrong with her, she just has a broken leg that will be better soon:)

Some of you know that Ezra was ill and having night waking and talking of "his brain going too fast." He's been fine for over a week now, Praise God:) Ayla was sick this past week with the same thing Ezra had, which was diagnosed as a viral infection. They had a pretty ugly rash at the tail end of it, but it's gone now. She missed one day of preschool b/c of it, but it's okay. She'll be back tomorrow.
People are still pouring blessings onto us and we are so thankful for how thoughtful people are and generous. Each time it happens it's like our eyes open wider to God's goodness.
We go back on the 26th for another xray. We aren't sure if the cast will come off then, but we shall see. They PT thought it would be better to leave it on for 8 weeks just to be safe. But we may ask if it's okay to take her out for an hour or 2 a week for a nice bath or something.
Thanks isn't enough for all the prayers you all are holding up for us, but we are very greatful:)
God Bless:)
Lacy