AYLA HAS HER CAST OFF!

AYLA HAS HER CAST OFF!!!!!
Yesterday the xray showed enough healing that the dr. okay'd the cast to come off. He said, "is she the kind of kid that's going to be running around and climbing furniture?" I replied, "um no. That's not her...she was only walking for 6 weeks before this happened. It will probably be a while before she is up and walking again." He said that it was fine to take it off. We brought her old magic legs (the ones with animals) and he said it's fine for her to wear those at preschool to keep her safe from the other kids running into her or falling on her. He gave some therapy instructions for her PT and OT.
We go back in 4 weeks to see what the bones look like. At thattime our PT wants me to ask if he can see any difference in bones now than when it first broke. As far as strength/thickness/density. We are curious to see if there is a change now that she's on a small amount of steroid, to see if it's effecting her bones less and less. Please pray that her bone continues to grow stronger:)

Last night, we took Ayla to the neighbors pool. Which was actually where we were on our way to when the brake happen. She had a blast!!! Praise God! It was so nice to see her kicking and moving and having fun with no pain again:) (Thanks Dave and Margaret)

Ezra has been very well. He seems to be doing better each week. Thanks for your prayers:)

Now that her cast is off we can do a bit of traveling up to see Ryan, my inlaws, and my family in NY:) Thanks so much once again and God Bless you all so much for your thoughts prayer and support in many different ways:)

Lacy

Ayla update 7-16-10

Hi all.
I wanted to let you all know that last on Friday Ayla saw the Rhuematologist in London. No big news to report except that she gave us the clear to continue weaning Ayla off of the steroids. That was great news! As much good as the medications do, they do some terrible things as well. It was mostly b/c of them that she broke her leg, that and the fact that to make your bones stronger you need to use them lots and she hadn't been for a while. That said, we had a break through at this appt. AYLA ACTUALLY SPOKE TO THE DOCTOR!! We have seen the same doctor lots and lots of time since all this began and she never once has spoken to her. Just cries or grunts or totally ignores. They had a short little conversation about how old she was and how old Ezra was and her necklaces:) It was so nice to have her not be so afraid. It was a fairly short appt and we don't have to see the Rhuematologist again until October. We will just communicate through email about the continuation of the weaning process.
A funny store from the doc appt was that there was a little boy a bit younger than Ayla and he was in the hall outside her room jumping and stomping his feet that he wanted a cool thing like she had:) Her "magic leg." They had to explain to him that it wasn't a toy and he couldn't take it home. Ayla was quite defensive about him taking her cast. It was cery cute. Much more refreshing than the "what's wrong with her?" question i get multiple times a day. Nothing is wrong with her, she just has a broken leg that will be better soon:)

Some of you know that Ezra was ill and having night waking and talking of "his brain going too fast." He's been fine for over a week now, Praise God:) Ayla was sick this past week with the same thing Ezra had, which was diagnosed as a viral infection. They had a pretty ugly rash at the tail end of it, but it's gone now. She missed one day of preschool b/c of it, but it's okay. She'll be back tomorrow.
People are still pouring blessings onto us and we are so thankful for how thoughtful people are and generous. Each time it happens it's like our eyes open wider to God's goodness.
We go back on the 26th for another xray. We aren't sure if the cast will come off then, but we shall see. They PT thought it would be better to leave it on for 8 weeks just to be safe. But we may ask if it's okay to take her out for an hour or 2 a week for a nice bath or something.
Thanks isn't enough for all the prayers you all are holding up for us, but we are very greatful:)
God Bless:)
Lacy

follow up 7-7-10

Ayla's xrays and follow up were nice and quick:) The bone is healing, not as quickly as "normal" but still healing. She goes back in a little less than 3 weeks and hopefully there will be a little more healing done. The bone is healing at a slight angle, but it should be okay and not need surgery since she's still growing....thanks for the thoughts and prayers:)
Lacy

Ayla 7-5-10 -Scooter:)

Ayla is doing well. Last Wednesday they got her a little scooter at preschool/physio. A friend of ours from church works there and got to show Ayla how it worked. She caught on quick. It's like a mini wheel chair, she can push around herself:) She loves it.
Preschool is better. This morning she didn't even fuss when i dropped her off. She's been telling us about her friends at school. Ryan thinks that is great, since he misses a lot.
We go for xrays on wednesday and follow up to see how she's doing, i'll let you all know how that goes.
The appt last week with the social worker went well. I'll be seeing her again next week. We made a list of goals that i have for our family and we prioritized them, so we'll be going down the list.
We had a great long weekend together! It was so nice to have Ryan home that extra day:) We made the most of it and had a camp out in the back yard. Ayla and Ezra thought it was great to sleep in the tent. I'm glad we did it before it got so hot!
I read this today in my reading:
The bottom may fall out, but He is still faithful. It is better to be in a storm with Jesus, than on the calm shore without Him.
Thanks for holding our girl and our family up in prayer:)
Lots of love. Lacy
Ayla in her new wheels (pardon the mess) :)