Ayla's checkup with the Doc

Today we went to see the Rhuematologist in London for Ayla's check up.
She was presently surprised at how well she is doing. She had no idea that Ayla could even stand:)
All her bloodwork came back perfect, so her liver and everything is holding up fine.
As for her leg, doesn't seem to be an issue. Maybe there was a pulled or tight muscle from being so busy. The PT thought that's what it might be. So we just have to keep an eye on it. It's nothing they would be able to see with an xray, it would have to be an MRI...which she would have to be sedated for. It's better now...Lord willing, it will stay better:) One of her legs is bigger than the other, as in thicker...so it must be stronger than the other and the smaller one was the hurt one.
She's got some discoloration all over her torsoe, which is apparently scarring from being so swollen for so long, it should go away.
She's weaning off her steroird slowly and it's going well. It will be a while before she's off because it's very slow, but she is handling it fine. I never knew this before, but the steroid makes your bones weaker, so a bad fall wouldn't be good. Not only now because she isn't strong enough to brace herself, but because of lack of bone strength.
It's so funny because Ayla shuts down as soon as we get there. She won't speak or look at the doctor other than with a scowl. As soon as we are done and walking down the hall, she's all chatty cathy again and bubbly and wants to go play in the play room. We almost didn't get her to walk for the doctor, since she's so "strong willed". But she did, a few steps. Dr said, it's good that she's so strong willed because that's probably why she's doing so well. But we know that God made her strong willed and God is helping her do so well:)
The set backs are hard, like when she couldn't walk this week and we had no idea what was happening. So many things run through your mind trying to "figure it out". Only one person knows what's wrong and how to fix it...and it's not Ryan or I or the doctors. He must be saying to us all the time, "STOP TRYING TO FIGURE IT OUT, I KNOW WHAT I'M DOING!!!!"
Praise God for the progress and the set backs. Praise God for all the love and prayers from you all.
The kids and i are off the Florida this evening to spend a week with my mom and brother. We are excited to have some fun...all Ayla cares about is "pool florida?" Yes, there will be a pool, so she'll be happy:)
Thanks again and God bless you all!
Lacy