Someone suggested that i start a blog for others to keep track of Ayla's journey with EF.
For those of you who don't know what that is here is a link:
http://www.medicinenet.com/eosinophilic_fasciitis/article.htm
http://www.aboutef.com/faq%5B1%5D.html
This disease has taken a lot away from our little girl but by the grace and strength of God she and we will get through this. She has lost her ability to be mobile in any way. She went from walking at 9.5months to totally incapapble of mobility at around 21/22 months.
I will try and keep those who follow updated and we are so very appreciated of love, support, and prayers.
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Thank you so much for sharing in your journey.. my thoughts are with you and your family...I pray those "2nd steps" will come quickly! Lots of Love!
ReplyDelete-Angie
If you send me that picture to the side of Ayla I can make you a header for your blog and tell you how to put it on.
ReplyDelete:)