Ayla went back to preschool this morning:) While not happy at first, she had a very fun morning and was happy the whole time:) She even made me a little craft. She has to spend preschool in her wheel chair to protect her from the other kids which i was nervous about...her being singled out. But i guess it was okay:)
I had an appt for Ayla this morning about dental work. She will need extensive work. She will be put under on Sept 3 to have the work done. Please pray for it to go well and for God to comfort her once again as she's in the hospital.
She will have another xray next WED to make sure the brace/cast is holding the bone well and healing is taking place. I know the Lord can do another miracle in her and heal her sooner than anyone can guess...just like "they" thought she might possibily never walk again...and 6 weeks later....WALKING. The Lord is in control and He is watching over our girl...
I have my first appt with the social worker on Wednesday. Pray that God can give our family some insight and help through this, as i know he can and is.
We are once again (it's never ended really) surrounded by some fantastic people...all blessing us in many ways in Christs name. We are very thankful and can't wait to spread those blessings onto others.
God Bless:)
Lacy
Monday, June 28, 2010
Wednesday, June 23, 2010
Ayla 6-23-10
Hi everyone. Ayla is doing alright. Her moods change quickly through out the day...i can't imagine how frustrating it must be for her. But she will say "this leg walk and this one broken, i walk soon). We went for xrays this mornign and the brace/cast hybrid is holding it in place fine and we'll go back in 2 weeks for another follow up. Thank God it's holding properly. We had her in this morning also for some alterations on her cast/brace. We had the other legs put on (not a cast) but the foam part (i'll have to post a pic) just b/c the brace was twisting and we didn't want it to hurt her leg more. So while it's good it will hold it more steady...it's wayyyy more difficult to change her and dress her. It was before, but now more so. Luckily i tried it there so he modified it a bit and it made it a bit easier. She fights with me any time it's time to get dressed, sometimes a very long battle. Everything is really more challenging now that it even was before b/c she only has limited movement in her leg. Like she can't sit at a 90 degree angle, which means she can't sit on the coutner and help me cook, which she used to do every night since she got sick and just became something fun we both love. We got her a new wheel chair b/c the other one was nearly impossible to get in and out of my car. This one is a bit small which is nice. She will be back at preschool next week (monday) and hopefully that will help some. She isn't sleeping well at night at all, awake 3-5 times. The social worker came out monday and we are going to get some help physically and emotionally for all of us. Praise God for that. Ezra has been fine this week. Ryan's parents have stayed down to help which we are all so greatful for. I'm not sure how i could keep it all together without their help. Anyways, that's all for now. Just a quick update so you all know what's going on. Thanks for all of you for praying and supporting us.
Saturday, June 19, 2010
home now
Hi Everyone. We are home now. We got home around 7 or so.
Ayla got her one of a kind prototype never been made before brace/cast made by someone awesome in Windsor:)
We got it all fitted and adjusted around 1/2 and then we had to go back to the hospital to see the Paediatrician and the Orthopedic surgreon with her new "magic leg". So far, they think it's perfect and will be fine. She is able to move her right leg (the one broken) from 180 degrees (laying) to about a semi sitting position so she can sit in her car seat. I do'nt imagine it's super comfortable but at least she isn't locked in one position like we were worried about.
We are awaiting some funding options b/c it's not covered like a regular cast. But the man that made it found us a use pieced of this "thing" that he made, so it cut the cost down, praise God!
Our OT that Ayla has at preschool is coming out tomorrow bringing a wheel chair/stroller and help us digure out some other things that we need (she is also the quality of life specialist). Bum changing is kind of difficult and changing her clothes, so there will be a big learning curve for me on my own.
So thankfully this is all way better than what it seemed yesterday morning. That said, we will be back to building up muscle again after this heals. The heal time would usually be 3/4 weeks in a "normal" child with this break, hers may be quite a bit longer due to the drugs she is on. We know the miracles He can do, please pray for a short healing so she can get back to pounding the pavement.
I also spoke with our social worker through where Ayla attends preschool/phsyio and she's coming out Monday to talk through some stuff and help us get Ezra some help. He has really been struggling so much and i was going to contact her this week anyways, and then this happened.
Thanks so much for all your prayers and support.
Ayla got her one of a kind prototype never been made before brace/cast made by someone awesome in Windsor:)
We got it all fitted and adjusted around 1/2 and then we had to go back to the hospital to see the Paediatrician and the Orthopedic surgreon with her new "magic leg". So far, they think it's perfect and will be fine. She is able to move her right leg (the one broken) from 180 degrees (laying) to about a semi sitting position so she can sit in her car seat. I do'nt imagine it's super comfortable but at least she isn't locked in one position like we were worried about.
We are awaiting some funding options b/c it's not covered like a regular cast. But the man that made it found us a use pieced of this "thing" that he made, so it cut the cost down, praise God!
Our OT that Ayla has at preschool is coming out tomorrow bringing a wheel chair/stroller and help us digure out some other things that we need (she is also the quality of life specialist). Bum changing is kind of difficult and changing her clothes, so there will be a big learning curve for me on my own.
So thankfully this is all way better than what it seemed yesterday morning. That said, we will be back to building up muscle again after this heals. The heal time would usually be 3/4 weeks in a "normal" child with this break, hers may be quite a bit longer due to the drugs she is on. We know the miracles He can do, please pray for a short healing so she can get back to pounding the pavement.
I also spoke with our social worker through where Ayla attends preschool/phsyio and she's coming out Monday to talk through some stuff and help us get Ezra some help. He has really been struggling so much and i was going to contact her this week anyways, and then this happened.
Thanks so much for all your prayers and support.
Wednesday, June 16, 2010
Ayla-a bad fall 6-17-10
Today, after dinner, Ayla had a bad fall. We took her to ER and she has a fractured femur. She put a temp cast on after hours and hourse of waiting, we are home finally at 2am. We are to go back into the Windsor Hospital a 6am for a cast, (we do'nt think surgery). Please pray so hard for another miracle in her. She is so scared and just doesn't want to do this all again. She will be in cast for 6-8 weeks which means that she will likely lose all muscle tone in that leg again. Please pray for our little girl like you have been. Please pray for Ezra as he is having such a hard time and this is just adding to it. Please pray for Ryan's work not to be influenced by coming home to be with her.
I'm tired and going to try and get a few hours sleep before the day begins.
I'm tired and going to try and get a few hours sleep before the day begins.
Saturday, June 5, 2010
Ayla update 6-4-10
I have been meaning to send an update on Ayla all week but sometimes life gets in the way of email:)
Ayla is doing well. She had lots of fun in Florida and enjoyed the pool very much:)
Her leg that was bothering her seems to be fine now and she's walking around very well. She has fallen a few times which have resulted in a goose egg on her forehead and a scrapped knee, but no broken bones. When she does fall it's very strange...like her legs give out, not like she trips. I'm praying the falling stage will be over soon because it's not very much fun. She still isn't strong enough to break her fall, but her upper body stregnth is coming along. We bought her some new walking shoes and they seem to be making a big difference in the way she walks. She also got some custom made orthotics. Together they have almost eliminated the "knock kneed" walk.
She has a hard time walking in the grass because she can't pick her legs up and step at the same time. But it will come:)
She saw the OT this week and she was able to get Ayla to crawl on her hands and knees, which is a huge deal because she couldn't weight bare like that on her arms almost at all. It's tiring for her, but it's coming. Praise God:)
She's struggling a getting up from laying down. She can't seem to get the roll and push with the arm good enough to get herself up. The PT is hoping that that comes soon because it's something we have been working on for a while.
She is having lots of fun pushing around her stroller and shopping cart all over the house and playing outside.
I'm trying to put together a short power point presentation of the miracle God has done in her for our church, when it's done i'll send it out to you all.
Thanks so much for the love and support from you all.
God Bless!
Lacy
Ayla is doing well. She had lots of fun in Florida and enjoyed the pool very much:)
Her leg that was bothering her seems to be fine now and she's walking around very well. She has fallen a few times which have resulted in a goose egg on her forehead and a scrapped knee, but no broken bones. When she does fall it's very strange...like her legs give out, not like she trips. I'm praying the falling stage will be over soon because it's not very much fun. She still isn't strong enough to break her fall, but her upper body stregnth is coming along. We bought her some new walking shoes and they seem to be making a big difference in the way she walks. She also got some custom made orthotics. Together they have almost eliminated the "knock kneed" walk.
She has a hard time walking in the grass because she can't pick her legs up and step at the same time. But it will come:)
She saw the OT this week and she was able to get Ayla to crawl on her hands and knees, which is a huge deal because she couldn't weight bare like that on her arms almost at all. It's tiring for her, but it's coming. Praise God:)
She's struggling a getting up from laying down. She can't seem to get the roll and push with the arm good enough to get herself up. The PT is hoping that that comes soon because it's something we have been working on for a while.
She is having lots of fun pushing around her stroller and shopping cart all over the house and playing outside.
I'm trying to put together a short power point presentation of the miracle God has done in her for our church, when it's done i'll send it out to you all.
Thanks so much for the love and support from you all.
God Bless!
Lacy
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